Over 122,000 Call on JDRF, ADA to Increase Spending on Type 1 Diabetes Cure Research

The type 1 diabetes community’s desire for change continues to grow louder

NEW YORK--()--More than 122,000 individuals have signed the 3rd Annual More for a Cure Petition, which calls on the largest diabetes foundations to significantly increase funding for Type-1 Diabetes cure research after spending on such initiatives hit a record low in 2015 and has remained mostly flat since then.

“I signed for my 2-year-old son, Gavin. He was diagnosed 2 weeks before his second birthday”

Organized by the Juvenile Diabetes Cure Alliance (JDCA), the petition ran for 11 weeks and closed on November 24, 2017. This year’s record participation is more than double last year’s turnout and nearly quadruple the number who signed the initial petition in 2015; it represents the growing chorus of people demanding accountability from both the JDRF and the American Diabetes Association (ADA), which are the two biggest diabetes-focused fundraising organizations.

An estimated two million Americans are affected by Type-1 diabetes, and about half are diagnosed during childhood. Those living with the disease need multiple injections of insulin every single day and are on constant alert while monitoring blood sugar levels. The debilitating long term consequences of T1D can include eye, heart, nerve, and kidney failure.

"Reaching 100,000 signatures is a momentous accomplishment which clearly shows that people want their donations for Type-1 Diabetes to fund cure research over any other initiatives,” said Phil Shaw, General Manager for the JDCA. “This is the number one priority of most people who walk, ride, and dance in fundraising events for T1D. Yet, despite this preference, funding towards cure research from both the ADA and JDRF has been declining for several years and is at or near historic lows.”

Both the JDRF and ADA have been operating for decades and built expansive operational and fundraising infrastructures. Despite donor insistence for an increase in research funding, only 37% of JDRF’s income in 2015, down from 64% in 2008, was spent on research funding. Additionally, only 3% of the ADA’s 2015 income was used to fund type 1 research despite the majority of fundraising events hosted by both organizations promising to use the proceeds for research. In addition to directly addressing the concerns of petition signers, the JDCA is also seeking a formal commitment from these foundations to increase spending on cure research in the coming years.

“I signed for my 2-year-old son, Gavin. He was diagnosed 2 weeks before his second birthday,” petition signer LeAnn Smith told the JDCA. “I signed because of the struggle that we face every day with managing a 2-year old’s sugar levels and because no one this young should have to go through this. I believe that this disease takes away a little of their childhood and ability to just be a kid.”

In an age of ever more access to data and increasing transparency, the JDRF and ADA are under increased scrutiny over how donations are spent. If they continue to stray from the priorities of their donors, they run the risk of hampering their ability to effectively fundraise. For type 1 diabetes charities, this means staying focused on investing in research, as supported by all those who signed the petition.

About the JDCA

The JDCA is a privately funded T1D-focused nonprofit that aims to empower donors and prompt transparency in the major diabetes charities.

Become an Alliance member: http://thejdca.org/join-the-alliance/
Become a fan on Facebook: https://www.facebook.com/thejdca

If you’d like more information about the petition or to schedule an interview with the JDCA General Manager Phil Shaw, please contact us via the following:

Contact: Ryan Gorman
Telephone: 646-820-4212
Email: ryan@gormanstrategies.com

Contacts

Juvenile Diabetes Cure Alliance
Jillian Sermonte, 212-308-7433
jts@thejdca.org

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